Monday, December 01, 2008

Well, I couldn't make it to work today. I'm gonna drag my derriere there tomorrow, even though I may have to leave early. It doesn't exactly "hurt" but the top of my ear and around it is numb and kinda tingly and sore. Sometimes it feels like I have an earache deep inside - probably my cochlea healing.

Thursday, November 27, 2008

Happy Thanksgiving to all! I'm thankful for SO many things. I have an amazing group of people in my life who support me, love me, and take great care of me! You know who you are!

Today I'm feeling better. Deborah took off my bandage yesterday. I was a little nervous about that. I got a little light headed a couple of times, but managed to do just fine. I'll try taking a shower and washing my hair today, since I last washed it on Sunday I think its due!

I'm going to try posting a picture of my turban bandage and I have one with the bandage off.

One piece of bandage is stuck and will hopefully come off in the shower. I'm continuing with pain meds every 4 hours, just trying to stay ahead of it. It's keeping me pretty loopy, so I'm going to start stretching it to every 6 hours today. I've been very fortunate and have had no facial numbness and no taste issues. The right side where they did the surgery is a bit numb and is starting to itch (which is a good thing - means it's healing).

I hope this finds everyone enjoying their family and friends and having a wonderful Thanksgiving!

Tuesday, November 25, 2008

Well... yesterday was the big day! I got up at 4am (eww) and Deborah & I made it to OSU Hospital by 5:30 am. Admitting got us checked in and so began the "hurry up and wait" process. We actually didn't have to wait too long for any of the steps. They took us upstairs to wait for a room, and it was only about a 5-10 minute wait. Got to the room and changed into my lovely designer gown! I had the joy of peeing in a cup... (are you ready for this?) for a pregnancy test! ROFL! I assured them there was no possible way I could be pregnant, but apparently they have to test everyone! (btw - I'm not pregnant).

The nurse came in and said they were trying to get the anesthesiologist to come up and talk to me, so I could keep my glasses & hearing aid in. The transport folks showed up and took me down for surgery. I talked to the anesthesiologist out in the hallway. This isn't standard - they usually do this in the surgery room, for privacy issues, but they needed to have their masks on in the surgery room (making it impossible for me to read their lips).

Since I was nervous, it felt like forever, but was likely only a couple of minutes.The anesthesiologist started up my IV and my surgeon (Dr. Brad Welling) reassured me that everything would be fine. The anesthesiologist gave me the first shot in my IV, then a second shot, then the next thing I remember is waking up in the recovery room. The surgery took 3 hours and about 45 minutes, then I was in recovery for about an hour and a half. They took me back up to my room and watched me for another hour or so, after giving me a pain pill. On a trip back from the bathroom I looked in the mirror - EEEK! I have a lovely topless turban with a big bulge over my right ear. I have to leave it on for 2 days, which means I can wash up just after my parents get here on Wednesday.

I was on my way home by 2:30 or so. Stopped at the grocery store to fill my prescription and get a few groceries (I slept in the car while Deborah went in). Got home and she settled in my new (to me) recliner and I have been here since yesterday. Deborah is a wonderful nurse and has been taking very good care of me without hovering. Just a perfect balance of being there and giving me space.

I slept fitfully last night but I've been napping more than sleeping. Pain pill, nap, pain pill nap, etc.

Sunday, November 16, 2008

If you want to follow my blog and (like me) forget to keep coming back to check for changes or updates, you can add me.
Okay... we're in the final countdown now! Folks keep asking me how I feel, and I'm not really sure how to answer. I'm excited about the possibility of being able to hear better, but it's just that - a possibility, not a guarantee. I'm trying to go into this with low expectations and high hopes.

I'm totally NOT looking forward to the actual part of surgery. The last surgery I had (my gall bladder), I didn't come out of anesthesia very well. I just wanted to keep sleeping. Finally I drug myself off the gurney and out to the car, then slept on the way home, and slept at home a bunch more. I kept thinking feeling crappy was never going to end, but of course it did. I just need to remind myself (or have my family and friends remind me) "this too shall pass"!

I'm preparing myself to get comfy in my living room: getting the laptop ready; bought a new game for my Nintendo DS; have a shelf full of books to read and just enjoying my friends and family. I'll be housed in the living room on either my new (to me) recliner or my very comfy couch, until my parents and Aunt Beverly head home on Saturday (?).

I'm nervous about the surgery... there's always some possibility of stuff going wrong with anything. I just have to trust God knows what he is doing and will guide my doctors and nurses and God's will will be done in all this. That's where I'm finding the most peace, is trusting God to do what God does best, and trying to keep my hands off.

Speaking of hearing better... my implant does not get "activated" or "turned on" until January 7, 2009. Then I will begin a long process of teaching my brain to hear again. I'll be listening to books on tape along with the book and hoping I can get a couple of different people to read to me. I need to teach my brain what is being said matches the words on the page.

My 'need to know' what to expect continues... I will be asking more questions of my doctor and his team and posting more here.

Please keep me (and my doctors and nurses and audiologist) in your prayers.

Tuesday, October 28, 2008

Since folks with cochlear implants have an increased risk for meningitis, I need to get the vaccine. I'll wind up getting Pneumovax here at my office. One of the perks of working here! I've waited so long to do this, I've wondered if I would ever get to this point of heading down the road to surgery. Well here I am... rolling along and so far, no bumps!

Monday, October 27, 2008

Surgery is now scheduled!

I got 2 new hearing aids, thanks to BVR and although they are better than the ones I had, they don't help me as much as they need to. I went thru the CI tests again and properly "flunked", making me a CI candidate. I met with Dr. Welling on October 23, 2008 to discuss the details and schedule surgery. I've done so much research into this that I feel like I know what to expect. I know to keep my expectations low and my hopes high. I want this to work and I've read the postings from folks where it was an abysmal failure to folks who think it's the absolute best thing that's happened in their lives. The folks who seem to have done the best have had some hearing before this and are post-lingually deaf. I hate referring to myself as "deaf", since I think deaf means Deaf - can't hear a thing. I prefer to call myself prof0undly hard of hearing. I know it's a minor difference, but it's a difference all the same.

There's not much to do in the meantime here... but wait for the 24th. Then there won't be much to do but wait until January 7th - my activation date. Then I get to start all the hard work of learning to hear.